Getting the most from your doctors appointment

Being a partner in your own care is key to making the most of your health.


Being your own advocate

When dealing with a condition that is so poorly understood by so many,  the need to be an advocate for yourself, or you child/loved one, becomes even more necessary.


Explaining how hEDS/HSD makes you feel, to family, friends and colleagues, can be difficult

Some suggestions for the kind of 'tactful and helpful' questions that could be shown to family, friends and colleagues.


Why the zebra?

You may have noticed that the Ehlers-Danlos syndrome community is often associated with the zebra...


Chronic pain changes your brain

Scientists have found that chronic pain can change the way your brain processes emotion,