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Faces of individuals of different race and age looking down whilst standing in a circle. A resource for those with Ehlers-Danlos syndrome and hypermobility spectrum disorder


Knowledge is power

Fingers holding up a lightbulb -Knowledge is power - hypermobile Ehlers-Danlos syndrome
Fingers holding up a lightbulb -Knowledge is power - hypermobile Ehlers-Danlos syndrome
Girl holding Ehlers-Danlos syndrome awareness ribbon

hEDS & HSD are not rare, they are just rarely diagnosed!  

'Hypermobile Ehlers-Danlos syndrome is now considered the most prevalent type of heritable disorder of connective tissue in the world, and the prevalence for association of generalised joint hypermobility and widespread pain is higher still. This shift in understanding demands a different approach to information provision; one that is tailored specifically to those with hypermobile Ehlers-Danlos syndrome, and hypermobility spectrum disorder, and provides a clear, concise and balanced overview - one that allows you to ‘see the woods from the trees!

(Smith C. 2017)

Important note:

Readers are urged to take appropriately qualified medical advice in all cases.  The information on this website is intended to be useful to the general reader, but should not be used as a means of self-diagnosis, or for the prescription of medication.  Practitioners must check clinical procedures and always rely on their own experience and knowledge of their patients to make diagnoses and in evaluating and using any information, methods, compounds, or experiments described herein, and to take all appropriate safety precautions. None of the authors, contributors, administrators or anyone else connected with this site, in any way whatsoever, can be responsible for your use of the information contained in or linked from these web pages.


Content within this website and the individual contributions contained in it are protected under copyright by the author and publisher (other than as may be noted herein) - © Understanding Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder. by C. Smith 2017. Images bearing '' are designed and owned by the publisher and subject to copyright, all rights reserved.

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