Privacy policy

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Ehlers-danlos.guide (previously known as edhs.info is committed to your privacy and we only use the information we collect about you in accordance with the Data Protection Act.​

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We will never pass on your information to a third party for marketing purposes. If you have any questions about your personal data or our privacy policy please contact us. To see all the information we have about you, and to correct any inaccuracies, please write to: Claire Smith at the address given on the 'contact us' page, enclosing a fee of £10 to cover the administration costs.

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Use of cookies

We may use “cookies” to identify you when you visit the ehlers-danlos.guide web site and to build up a demographic profile. A cookie is a small piece of information sent by a web server to a web browser, which enables the server to collect information back from the browser. Find out more about the use of cookies on http://www.cookiecentral.com.