Useful Links

 

Please Visit Us on Our Facebook Page:  

Understand Ehlers-Danlos Hypermobility Type & Joint Hypermobility Syndrome at:  

https://www.facebook.com/pages/Understand-Ehlers-Danlos-Hypermobility-Type-Joint-Hypermobility-Syndrome/651656494908006

 

 

Information and Support

 

Hypermobility Syndromes Association - Details of current research, FAQ, discussion boards and a section for kids and teens. (Approved by Information Standards, supported by the NHS UK)

www.hypermobility.org

 

Ehlers-Danlos National Foundation (USA)

www.ednf.org

 

 

Inspire Support Community

www.inspire.com/groups/ehler-danlos-national-foundation

 

EDS Support UK

www.ehlers-danlos.org

 

POTs UK (Postural Orthostatic Tachycardia) (Approved by Information Standards, supported by the NHS UK)

www.potsuk.org

 

The Scoliosis Assoication (Approved by Information Standards, supported by the NHS UK)

www.sauk.org.uk

 

Pain UK - The national umberalla group for pain charities

www.painuk.org

 

Action on Disability and Work UK (bring employees and businesses together with advice and support to facilitate a successful pathway that works perfectly for everyone).

www.adwuk.org

 

'Guide to Hypermobility Syndrome' (dedicated to my hypermobile patients, from whom I have learned so much. I’ve come to understand hypermobility syndrome, but you’ve lived it.  By Dr Alan Pocinki 

www.cfids.org/pdf/joint-hypermobility-guide.pdf

 

Ehlers-Danlos Syndrome, Hypermobility Type: An Underdiagnosed Hereditary Connective Tissue Disorder with Mucocutaneous, Articular, and Systemic Manifestations' by Marco Castori, Medical Genetics Dept. of Molecular Medicine

www.ncbi.nlm.nih.gov/pmc/articles/PMC3512326

 

 

SCOPE - exists to make this country a better place for disabled people and their families

www.scope.org.uk

 

 

Help for Carers

 

The Princess Royal Trust for Carers

Unit 14 Bourne Court

Southend Road

Woodford Green

Essex

IB8 8HD

England tel: 0844 800 4361 Scotland tel: 0141 221 5066 Wales tel: 02920 221788

 

Carer’s Allowance Unit

Tel: 0845 608 4321 Email

 

Crossroads Association

10 Regent Place

Rugby

CV21 2PN

Tel: 0845 450 0350

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