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Useful Links


Please Visit Us on Our Facebook Page:  

Understand Ehlers-Danlos Hypermobility Type & Joint Hypermobility Syndrome at:



Information and Support


Hypermobility Syndromes Association - Details of current research, FAQ, discussion boards and a section for kids and teens. (Approved by Information Standards, supported by the NHS UK)


Ehlers-Danlos National Foundation (USA)



Inspire Support Community


EDS Support UK


POTs UK (Postural Orthostatic Tachycardia) (Approved by Information Standards, supported by the NHS UK)


The Scoliosis Assoication (Approved by Information Standards, supported by the NHS UK)


Pain UK - The national umberalla group for pain charities


Action on Disability and Work UK (bring employees and businesses together with advice and support to facilitate a successful pathway that works perfectly for everyone).


'Guide to Hypermobility Syndrome' (dedicated to my hypermobile patients, from whom I have learned so much. I’ve come to understand hypermobility syndrome, but you’ve lived it.  By Dr Alan Pocinki


Ehlers-Danlos Syndrome, Hypermobility Type: An Underdiagnosed Hereditary Connective Tissue Disorder with Mucocutaneous, Articular, and Systemic Manifestations' by Marco Castori, Medical Genetics Dept. of Molecular Medicine



SCOPE - exists to make this country a better place for disabled people and their families



Help for Carers


The Princess Royal Trust for Carers

Unit 14 Bourne Court

Southend Road

Woodford Green



England tel: 0844 800 4361 Scotland tel: 0141 221 5066 Wales tel: 02920 221788


Carer’s Allowance Unit

Tel: 0845 608 4321 Email


Crossroads Association

10 Regent Place


CV21 2PN

Tel: 0845 450 0350

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