UNDERSTANDING HYPERMOBILE EHLERS-DANLOS SYNDROME & HYPERMOBILITY SPECTRUM DISORDER
Further reading
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Authors - books and printable materials (listed in alphabetical order):
A Multi-Disciplinary Approach to Managing Ehlers-Danlos (Type III) – Hypermobility Syndrome
by Isobel Knight 2013
Bending without Breaking - Living with Ehlers-Danlos Syndrome Hypermobility Type
by Isobel Knight, (2nd Edition) Revised 2015
BrOKen: Living With EDS and Other Chronic Conditions
by Marcia Brock and Cassandra Campbell
An inspirational tale of living with chonic illness
Disjointed
edited by Diana Jovin
‘Hypermobile Ehlers-Danlos Syndrome during pregnancy, birth and beyond’
by Pearce G. Reinhold E. and Prezaro
Downloadable PDF (which has had more than 10,000 downloads by midwifery and medical professionals) can be found here:
Hypermobility and Hypermobility Syndrome -
A letter to my patients by Dr Alan Pocinki MD
Hypermobility, Fibromyalgia and Chronic Pain, 1e
by Hakim, Keer and Grahame, 2010
Published by Churchill Livingstone
Hypermobility Syndrome: Diagnosis and Management for Physiotherapists
by Rosemary J. Keer & Rodney Grahame.
Published by Butterworth Heinemann
Hypermobility Without Tears
by Jeannie Di Bon
Published independently
Joint Hypermobility Handbook 2010 (2nd edition)
by Dr. Brad Tinkle
Magnesium and EDS Parts 1 & 2
by Dr Heidi Collins
Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity
by Afrin, L. MD 2016
Our Stories of Strength: Living With Ehlers-Danlos Syndrome
by Reutlinger, Myles, Francomano et al,
Pilates Without Tears: The 5-step no pain, no strain strategy to move and feel great
by Jeannie Di Bon, 2016
Stickman Communications
by Hannah Ensor
A light hearted view aimed at predominately at children. Titles include:
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You know you have Hypermobility syndrome / Ehlers-Danlos syndrome when...
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You know you have Postural Orthostatic Tachycardia syndrome When...
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You know you have been in hospital too much when...
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You know you have been pushing it when...
Understanding hypermobile Ehlers-Danlos syndrome, and hypermobility spectrum disorder - previously known as Ehlers-Danlos syndrome hypermobility type, and joint hypermobility syndrome
by Claire Smith 2017