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Website content references

Beighton P. et al 1989 (2nd Edition) and 1999 (3rd Edition) Hypermobility of Joints - Biochemistry of Joint Hypermobility (Pages 25 - 39) - 11 DOI 10.1007/978-1-84882-085-2_2, © Springer-Verlag London Limited 2 (Updated 1999 - 3rd edition) 

Bernhard T. 2014 - original source -

Castori M. 2012 - Ehlers-Danlos Syndrome, Hypermobility Type: An Underdiagnosed Hereditary Connective Tissue Disorder with Mucocutaneous, Articular, and Systemic Manifestations' by Marco Castori, Medical Genetics Dept. of Molecular Medicine 

Castori M. et al 2017 - A framework for the classification of joint hypermobility and related conditions. Am J Med Genet Part C Semin Med Genet 9999C:1–10. 

Demmler J. et al 2019 - Diagnosed prevalence of Ehlers-Danlos syndrome and hypermobility spectrum disorder in Wales, UK: a national electronic cohort study and case–control comparison. BMJ Volume 9, Issue 11

1) Ehlers-Danlos Society 2017 - What is Ehlers-Danlos syndrome? ehlers- 

2)Ehlers-Danlos Society 2017 - Criteria for hypermobile Ehlers-Danlos syndrome - General Comment. hEDSvHSD.pdf 

3) Ehlers-Danlos Society 2017 - International Classification: Your Questions Answered PDF 

4) Ehlers-Danlos Society 2017 - EDS Diagnostics 2017 - ehlers-

5) Ehlers-Danlos Society 2017 - What is HSD? hsd/ 

Grahame R. 2012 - Pain and Joint Hypermobility syndromes - Accessed Nov 2014 

Hakim A.J 2017 (HMSA) - Hypermobility Disorders; an update for clinicians. March 16th 2017 

Hakim A. 2018 - Suggested explanatory foot note

Henderson Sr. F.C. et al 2017 - Neurological and spinal manifestations of the Ehlers–Danlos syndromes. Am J Med Genet Part C Semin Med Genet 175C:195–211.

HMSA 2014 - Have you, or someone you know, been diagnosed with one of the hypermobility syndromes? Trifold Leaflet - Copy written by Alan Hakim, Donna Wicks and Claire Smith 

HMSA 2014a- An educator’s guide to the hypermobile child - V3.9 - Copy written by Claire Smith, Donna Wicks and Alan Hakim

HMSA 2017 - Statement of Position on 2017 International Criteria for Ehlers-Danlos syndromes - re: 

Levy H.P. 2004 (updated 2007) - Ehlers-Danlos Syndrome, Hypermobility Type - , PhD GeneReviews - ( and copyright (University of Washington, Seattle) 

McGill Smith P.  - For Parents When They Learn Their Child Has a Disability.

Malfait F. et al 2017 - The 2017 international classification of the Ehlers– Danlos syndromes - American Journal of Medical Genetics Volume 175, Issue 1, March 2017, Pages 8–26 2019 - Ehlers-Danlos syndromes - Main types of EDS

Oliver J. 2005 - Hypermobility - Reports on the Rheumatic Diseases Series 5, Hands On - Hands.../HO07-Oct-2005.ashx 

Pocinki A.G MD PLLC - Joint Hypermobility and Joint Hypermobility Syndrome - Letter dedicated to my hypermobile patients.

Punzi L. et al 2000 - Pro-inflammatory interleukins in the synovial fluid of rheumatoid arthritis associated with joint hypermobility - Oxford Journals Rheumatology, Medicine & Health Rheumatology, Volume 40, Issue 2, Pp. 202-204 

Rare Disease UK 2016 - The Rare Reality – an insight into the patient and family experience of rare disease. 

Rodis J. 2013 - Being your own advocate.

Smith C. 2017 - Understanding Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder. ISBN: 978-1-9997300-0-0.

Tinkle B.T et al 2017 - Hypermobile Ehlers-Danlos syndrome (a.k.a. Ehlers-Danlos syndrome Type III and Ehlers-Danlos syndrome hypermobility type): Clinical description and natural history. Am J Med Genet Part C Semin Med Genet 9999C:1-22 

Wicks D. and Hakim A.J. 2017 - Spectrum of JH/HSD/hEDS - Explained in person.

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