Website content references

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Bernhard T. 2014 - original source - www.toniberhard.com

Castori M. 2012 - Ehlers-Danlos Syndrome, Hypermobility Type: An Underdiagnosed Hereditary Connective Tissue Disorder with Mucocutaneous, Articular, and Systemic Manifestations' by Marco Castori, Medical Genetics Dept. of Molecular Medicine www.hindawi.com/isrn/dermatology/2012/751768/ 

Castori M. et al 2017 - A framework for the classification of joint hypermobility and related conditions. Am J Med Genet Part C Semin Med Genet 9999C:1–10. 

Demmler J. et al 2019 - Diagnosed prevalence of Ehlers-Danlos syndrome and hypermobility spectrum disorder in Wales, UK: a national electronic cohort study and case–control comparison. BMJ Volume 9, Issue 11

1) Ehlers-Danlos Society 2017 - What is Ehlers-Danlos syndrome? ehlers- danlos.com/what-is-eds/ 

2)Ehlers-Danlos Society 2017 - Criteria for hypermobile Ehlers-Danlos syndrome - General Comment. ehlers-danlos.com/wp-content/uploads/ hEDSvHSD.pdf 

3) Ehlers-Danlos Society 2017 - International Classification: Your Questions Answered PDF 

4) Ehlers-Danlos Society 2017 - EDS Diagnostics 2017 - ehlers- danlos.com/eds-diagnostics/

5) Ehlers-Danlos Society 2017 - What is HSD? ehlers-danlos.com/what-is- hsd/ 

Grahame R. 2012 - Pain and Joint Hypermobility syndromes - hypermobility.org/help-advice/pain-management-2/pain-and-jhs/ Accessed Nov 2014 

Hakim A.J 2017 (HMSA) - Hypermobility Disorders; an update for clinicians. hypermobility.org/update-for-clinicians/ March 16th 2017 

Hakim A. 2018 - Suggested explanatory foot note

Henderson Sr. F.C. et al 2017 - Neurological and spinal manifestations of the Ehlers–Danlos syndromes. Am J Med Genet Part C Semin Med Genet 175C:195–211.

HMSA 2014 - Have you, or someone you know, been diagnosed with one of the hypermobility syndromes? Trifold Leaflet - Copy written by Alan Hakim, Donna Wicks and Claire Smith 

HMSA 2017 - Statement of Position on 2017 International Criteria for Ehlers-Danlos syndromes - re: hypermobility.org/sop2017eds/ 

Levy H.P. 2004 (updated 2007) - Ehlers-Danlos Syndrome, Hypermobility Type - , PhD GeneReviews - www.ncbi.nlm.nih.gov/books/NBK1279/ (www.ncbi.nlm.nih.gov/books/NBK1116/) and copyright (University of Washington, Seattle) 

McGill Smith P.  - For Parents When They Learn Their Child Has a Disability. www.parentcenterhub.org/wp-content/uploads/repo_items/notalone.pdf

Malfait F. et al 2017 - The 2017 international classification of the Ehlers– Danlos syndromes - American Journal of Medical Genetics Volume 175, Issue 1, March 2017, Pages 8–26 

NHS.uk 2019 - Ehlers-Danlos syndromes - Main types of EDS

Oliver J. 2005 - Hypermobility - Reports on the Rheumatic Diseases Series 5, Hands On - www.arthritisresearchuk.org/~/media/Files/.../ Hands.../HO07-Oct-2005.ashx 

Pocinki A.G MD PLLC - Joint Hypermobility and Joint Hypermobility Syndrome - Letter dedicated to my hypermobile patients. www.dynainc.org/docs/hypermobility.pdf

Punzi L. et al 2000 - Pro-inflammatory interleukins in the synovial fluid of rheumatoid arthritis associated with joint hypermobility - Oxford Journals Rheumatology, Medicine & Health Rheumatology, Volume 40, Issue 2, Pp. 202-204 

Rare Disease UK 2016 - The Rare Reality – an insight into the patient and family experience of rare disease. 

Rodis J. 2013 - Being your own advocate. www.chronicpainpartners.com/being-your-own-advocate-part-one/

Smith C. 2017 - Understanding Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder. ISBN: 978-1-9997300-0-0. www.redcliffhousepublications.co.uk

Tinkle B.T et al 2017 - Hypermobile Ehlers-Danlos syndrome (a.k.a. Ehlers-Danlos syndrome Type III and Ehlers-Danlos syndrome hypermobility type): Clinical description and natural history. Am J Med Genet Part C Semin Med Genet 9999C:1-22 

Wicks D. and Hakim A.J. 2017 - Spectrum of JH/HSD/hEDS - Explained in person.

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