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New from the creator of this website -

a fully referenced, evidenced based book covering all aspects of hypermobile Ehlers-Danlos syndrome, and hypermobility spectrum disorder; previously known as EDS-H & JHS.


As some of you may be aware, publication of this much anticipated book was delayed slightly whilst the EDS medical and patient community awaited the formal outcome of the recent EDS Classification. The content, which reflects the latest information from the International Consortium on Ehlers-Danlos syndrome, has now undergone a full and final review by Dr Alan Hakim, with relevant sections having also been read by experts such as Dr Suranjith Seneviratne, Dr Pradeep Chopra, Professor Shea Paler and Dr Leslie Kavi.  


How to purchase:

To find out more, or to purchase, please click here 

Some feedback:


‘I am excited by the book concept - very much needed I think, good quality but accessible info.’

Emma Frith, Clinical Trial Manager, Oxford Brookes

‘Wow this is incredibly helpful. I was diagnosed several years ago and I still didn't know about at least half of this. It explains SO much!’ Expert Patient Reviewer


‘Congratulations on writing a very comprehensive overview.’

Dr Lesley Kavi

'You must publish this book Claire and as soon as possible.  Do not let your self doubt stop you. I will be recommending your book to my patients. I think your chapter on mast cell activation syndrome is very good - very well done.' - Dr Seneviratne, Director of the Centre for Mast Cell Disorders, and Consultant in Clinical Immunology and allergy, UCL


‘I'd buy the book based only on that exert I’ve read Claire! Put me down for an early signed copy!’

Scott Ponton


‘Your wonderful book; it must and will be published. I’ve just read the section explaining dysautonomia and PoTs and it is really good’.

Alan Hakim, Consultant Rheumatologist at the Hypermobility Unit, Hospital of St John and St Elizabeth.


‘Thank you so much for working on this! Your website is one of most well put together, websites about EDS and hypermobility that I have found, I very much look forward to reading your book’

Nettie Clouse

'Dear Claire, thank you for your noble initiative of writing this book! Sorry for the delay in answering.' - Dr Marco Castori - Clinical Genetics at the Division of Medical Genetics of the San Camillo-Forlanini Hospital in Rome 

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